Sheila Oliver's Campaigning Website

Email - concerns <Concerns@cqc.org.uk>; england.safeguarding@nhs.net

c.c. pam.cox.mp@parliament.uk

Sun 03/08/2025 18:08

Child B

Child B recently vomited faecal matter after being placed on a calorie plan. This occurred despite my repeated warnings about suspected faecal overload. Requests for scans and clinical review were repeatedly dismissed by both King’s College Hospital and Colchester Hospital. These events represent a serious failure to acknowledge clinical risk. Going forward, any Multi-Disciplinary Team (MDT) meetings must include the GOSH spinal team and Dr Eparu, Clinical Psychiatrist at Steppingstones. As far as I am aware Dr Eparu has not even been invited to the meeting tomorrow between Colchester hospital, camhs and Kings!

The local safeguarding lead must urgently review whether the paediatric sepsis pathway has been followed appropriately in Child B's case. It is unacceptable that as a parent I was left to identify and raise concerns about potential red flags, including elevated temperature, impaction, feeling sick as full and in pain, and behavioural changes suggestive of systemic illness. These issues should have triggered clinical reassessment and escalation without delay rather than at one point a suggestion to section to force fed! She then vomited faecal matter after being continuously forced to eat.

Child B's prior colonoscopy was only partially completed and failed to reach the terminal ileum—precisely the region where her sibling had documented abnormalities. Despite this, the procedure was inaccurately recorded as 'normal' and was not repeated. This misrepresentation has led to inappropriate discharge and neglect of her ongoing GI symptoms. Future gastrointestinal investigations must now take place at Addenbrooks who completed a transit study 7.1.25 or Colchester Hospital. King’s College Hospital must be excluded from further involvement due to documented harm. In fact it wasn’t even made clear that the colonscopy actually took place in Feb 2025 and not July !

Dr. Matthew’s previously agreed clinical plan included formal disimpaction, which was not carried out despite clear indications and prior faecal loading on imaging. No satisfactory clinical explanation has been provided for this omission. It is requested that Dr. Matthew now take over Child B's clinical care at Colchester to ensure safe and consistent oversight.

Child B has a confirmed diagnosis of autism with a PDA (Pathological Demand Avoidance) profile. She experiences extreme distress in response to perceived demands or loss of autonomy. Her behaviour may appear avoidant or controlling, but this is often a stress response rooted in nervous system dysregulation. Staff must avoid coercive approaches, overwhelming language, or escalating threats. A communication passport should be implemented immediately, with clear recognition that while Child B is 12 years old, she is emotionally younger and may struggle to process complex or rapid information. Communication should be broken down into small, manageable chunks. She also experiences heightened fight-or-flight responses and should be supported with trauma-informed, low-arousal strategies rather than a threat made by paediatrician to section in front of Child B.

Jo